Exploration of lived experiences among LGBT individuals living with HIV/AIDS: A phenomenological study
DOI:
https://doi.org/10.30787/gaster.v24i1.2402Keywords:
LGBT, HIV/AIDS, Lived Experiences, Phenomenology, Qualitative ResearchAbstract
Background: Lesbian, gay, bisexual, and transgender (LGBT) individuals remain a key population with high vulnerability to HIV/AIDS. Although antiretroviral therapy has significantly reduced morbidity and mortality, LGBT people living with HIV/AIDS continue to face layered stigma stemming from both HIV status and sexual or gender identity. However, in-depth understanding of the lived experiences of this population, particularly within Indonesia's sociocultural context, remains limited. Objective: This study aimed to explore and understand the lived experiences of LGBT individuals living with HIV/AIDS in Lampung Province through a phenomenological approach. Methods: A qualitative phenomenological study was conducted with 15 LGBT participants living with HIV/AIDS. Data collection was performed through in-depth interviews during September–October 2025 in Lampung Province. Data analysis employed in vivo coding to preserve the original meaning of participants' expressions. Research reporting followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines. Results: Analysis yielded three major themes: (1) living in the shadow of layered stigma, (2) negotiating identity and self-acceptance following HIV diagnosis, and (3) building meaning in life and resilience. These themes emerged from interrelated subthemes and categories, all grounded in participants' narratives. Conclusion: The lived experience of LGBT individuals with HIV/AIDS constitutes a complex and multidimensional phenomenon encompassing social, psychological, and existential dimensions. These findings underscore the critical importance of inclusive HIV services that are sensitive to stigma and oriented toward psychosocial needs.
References
UNAIDS. Global AIDS Update 2025 : AIDS, CRISIS AND THE POWER TO TRANSFORM. (UNAIDS, Geneva, 2025).
Ikhwan Amirudin, A. W., Astuti Yuni Nursasi, Dian Ayubi. Perceptions and experiences of drug-resistant tuberculosis, HIV, and AIDS patients who experience loss to follow-up based on life values and stigma: a phenomenological study. Physical Therapy Journal of Indonesia (PTJI) 6, 55-63 (2025). https://doi.org/10.51559/ptji.v6i1.290
Sujianto, U., Amirudin, I., Akbar, M. A., Waluyo, A., Nursasi, A. Y. Exploring antiretroviral treatment discontinuation among people living with HIV in Indonesia: A qualitative study. Belitung Nursing Journal 11, 722-732 (2025). https://doi.org/10.33546/bnj.4129
Fauk, N. K., Hawke, K., Mwanri, L. & Ward, P. R. Stigma and Discrimination towards People Living with HIV in the Context of Families, Communities, and Healthcare Settings: A Qualitative Study in Indonesia. Int J Environ Res Public Health 18 (2021). https://doi.org/10.3390/ijerph18105424
Amirudin, I., Waluyo, A. & Nursasi, A. Y. CHALLENGES OF USING TELEHEALTH IN TRACKING TUBERCULOSIS HIV AIDs PATIENTS: A SYSTEMATIC REVIEW. Jurnal Aisyah : Jurnal Ilmu Kesehatan; Vol 9, No 2 (2024): SeptemberDO - 10.30604/jika.v9i2.2927 (2024).
Earnshaw, V. A. et al. Methods in HIV-Related Intersectional Stigma Research: Core Elements and Opportunities. Am J Public Health 112, S413-s419 (2022). https://doi.org/10.2105/ajph.2021.306710
Maulidiah JAH, J. A., Hidayat M. Stigma pada penderita HIV/AIDS: A systematic review. Indonesian Health Science Journal 3, 32-38 (2024). https://doi.org/10.52298/ihsj.v3i2.43
Moran, L. et al. Insights on HIV Care Engagement Strategies from Seven Interventions Serving Key Populations in the United States: A Qualitative Study. AIDS Patient Care and STDs 39, 102-115 (2025). https://doi.org/10.1089/apc.2024.0164
Neubauer, B. E., Witkop, C. T. & Varpio, L. How phenomenology can help us learn from the experiences of others. Perspect Med Educ 8, 90-97 (2019). https://doi.org/10.1007/s40037-019-0509-2
Creswell, J. W. & Creswell, J. D. in Mixed Methods | Qualitative Methods | Research Design Vol. 6 (SAGE Publications, Inc, 2022).
Guest, G., Namey, E. & Chen, M. A simple method to assess and report thematic saturation in qualitative research. PLOS ONE 15, e0232076 (2020). https://doi.org/10.1371/journal.pone.0232076
Palinkas, L. A. et al. Purposeful Sampling for Qualitative Data Collection and Analysis in Mixed Method Implementation Research. Administration and Policy in Mental Health and Mental Health Services Research 42, 533-544 (2015). https://doi.org/10.1007/s10488-013-0528-y
Kallio, H., Pietilä, A.-M., Johnson, M. & Kangasniemi, M. Systematic methodological review: developing a framework for a qualitative semi-structured interview guide. Journal of Advanced Nursing 72, 2954-2965 (2016). https://doi.org/https://doi.org/10.1111/jan.13031
Saldana, J. The coding manual for qualitative researchers. Vol. 4 504 (Sage Publication Ltd, 2021).
Enworo, O. C. Application of Guba and Lincoln's parallel criteria to assess trustworthiness of qualitative research on indigenous social protection systems. Qualitative Research Journal 23, 372-384 (2023). https://doi.org/10.1108/QRJ-08-2022-0116
Kamila, A., Widyawati, W., Hasanbasri, M. & Hakimi, M. Capturing the HIV-related social exclusion practices experienced by key populations through photovoice: an interpretative phenomenological study. Reproductive Health 21, 107 (2024). https://doi.org/10.1186/s12978-024-01832-y
Lee, Y.-K., Cho, S.-Y. & Roh, H.-T. Effects of 16 Weeks of Taekwondo Training on the Cerebral Blood Flow Velocity, Circulating Neurotransmitters, and Subjective Well-Being of Obese Postmenopausal Women. International Journal of Environmental Research and Public Health 18, 10789 (2021).
Fauk, N. K., Ward, P. R., Hawke, K. & Mwanri, L. HIV Stigma and Discrimination: Perspectives and Personal Experiences of Healthcare Providers in Yogyakarta and Belu, Indonesia. Front Med (Lausanne) 8, 625787 (2021). https://doi.org/10.3389/fmed.2021.625787
Sudastri, N. K., Wulandari, L. P. L. & Januraga, P. P. Manifestation and Markings of HIV Stigma in Indonesia: A Scoping Review. International Journal of Environmental Research and Public Health 22, 840 (2025).
Culbert, G. J. et al. Impart: findings from a prison-based model of HIV assisted partner notification in Indonesia. Journal of the International AIDS Society 26, e26132 (2023). https://doi.org/https://doi.org/10.1002/jia2.26132
Sasset, L. et al. Perceived HIV-related stigma: disparities between an Infectious Diseases Unit and other hospital departments. AIDS Research and Therapy 23, 6 (2025). https://doi.org/10.1186/s12981-025-00827-4
Tran, T., Nguyen Hoang, A.-V., Phan, Y. & Vu-Tri, T. HIV-related Stigma and Discrimination Toward People Living With HIV Among Healthcare Workers and Associated Factors. Malaysian Journal of Medicine and Health Sciences 21, 252-260 (2025). https://doi.org/10.47836/mjmhs.21.1.31
Sarno, E. L., Swann, G., Xavier Hall, C. D., Newcomb, M. E. & Mustanski, B. Minority Stress, Identity Conflict, and HIV-Related Outcomes Among Men Who Have Sex with Men, Transgender Women, and Gender Nonbinary People of Color. LGBT Health 9, 411-417 (2022). https://doi.org/10.1089/lgbt.2021.0401
Clair-Sullivan, N. S. et al. ‘We are fragile, but we are strong’: A qualitative study of perspectives, experiences and priority outcomes for people living with HIV and frailty. HIV Medicine 26, 339-349 (2025). https://doi.org/https://doi.org/10.1111/hiv.13722
Jiang, L. et al. Trajectories of posttraumatic growth among people living with HIV: a grounded theory-based qualitative analysis. BMC Public Health 25, 574 (2025). https://doi.org/10.1186/s12889-025-21822-4
Sematlane, N. P., Knight, L., Masquillier, C. & Wouters, E. A cross-cultural adaptation and validation of a scale to assess illness identity in adults living with a chronic illness in South Africa: a case of HIV. AIDS Res Ther 19, 39 (2022). https://doi.org/10.1186/s12981-022-00464-1
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2026 IKHWAN AMIRUDIN, Nor Aziyan, M. Agung Akbar, Agung Waluyo, Astuti Yuni Nursasi

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.









